What Is Anticipatory Grief and Why Does It Hurt So Much?

Hi, I’m Ana Maria Romanow, Phillip’s mum and today I want to talk about something I never knew existed until I lived it: anticipatory grief. I started living with this kind of grief when my son Phillip was just a month and a half old. That’s when my family and I were told he had […]

Grief Nearly Broke Our Marriage But Love Held Us Together

Grief doesn’t just change you. It reshapes everything around you, including your closest relationships. And our marriage was no exception. Our World Collapsed When our son Phillip was diagnosed with Menkes disease, a terminal illness with no cure, our world collapsed. In an instant, every dream we had for his life, and for our life […]

Strength That Only Love Could Bring Out

For most of my life, I saw myself as the quiet one, introverted, uncertain, and always looking for approval. I spent years questioning my worth, doubting my voice, and shrinking myself to make space for everyone else. I didn’t know who I really was… until my son Phillip was diagnosed with Menkes, a terminal disease. That moment changed […]

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